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In
the beginning of this "situation", Joshua started out
with having the seizures where he would become
unconscious, collapse to the ground and begin to
have full body convulsions (Generalized tonic clonic
aka grand mal seizures). On one of our more
challenging days, he had 7 grand mal seizures with
several of those seizures lasting in excess of 5
minutes and one lasted over 9 minutes in duration.
It
feels like an eternity to see someone have a grand
mal seizure even for just one minute. The day Joshua
had 7 grand mal seizures was by far the longest day
of my life. Needless to say, we spent the next
couple of weeks in the hospital trying to first of
all control Joshua’s seizures and then secondly to
find out why he was having them.
About a year later, Joshua began having seizures where
he would collapse to the ground as if he was going
to have a grand mal seizure but he would remain
conscience but
not be able to control certain parts of his body.
One time he fell to the kitchen floor with his arms
and legs convulsing and all he could do was cry out
to me saying, “Help me, help me”. Talk about heart
breaking. I had to muster up all the courage I had
to stay strong but most importantly calm for this
helpless little boy, my son.
A few months later Joshua began to have seizures where
he would not collapse but he lose control of some of
his body parts, in particular his upper body (Myoclonic
seizures). Many times we would see his little arms
and hands jolt or fly up in the air quickly. Boy,
does that make for some interesting times.
Joshua
could have been the poster child or spokes person
for Bounty®
paper towels. I can’t begin to tell you how many
clean ups we had to do because of all those
seizures.
Today Joshua experiences on the average about 15 drop
seizures a day (Atonic seizures). These seizures are
very short in duration, most only lasting a few
seconds. They look very similar to when someone is
sitting in a chair and they doze off to sleep and
their head, upper body, arms and hands drop forward
quickly.
When Joshua has these seizures he does have
a brief loss of consciousness and we still have to
be very careful with him and the activities he
engages in.
And (hopefully) finally, Joshua every once in a while
will still have the seizures that cause him to look
like he is daydreaming (Petit mal aka absence
seizures). Sometimes we’ll call out to him or even
touch him on the shoulder or arm but he is not able
to respond right away.
After a long time of enduring many tests, numerous
hospital stays, and traveling around the country
visiting a variety of specialists, Joshua was
diagnosed with Idiopathic Epilepsy. While other
types of epilepsy may be caused by brain tumors,
strokes or other neurological disorders, Idiopathic
Epilepsy syndrome is a primary brain disorder that
has no other identifiable cause.
We actually had a
very well known neurologist from our home state of
Florida tell us that meant “Us idiots (the
neurologists) can’t do the pathology”! There is a
very important lesson to be learned here…
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Sometimes You Just Have To Make Light Of The
Situation! |
No, Joshua is not seizure free but we have come a
long way. We always try to keep our situation in to
prospective. Yes, being touched by seizures can be
very challenging but when I look at some of the
other people I know and some of the other health
conditions out there, it makes me very thankful that
our challenge is seizures and Epilepsy and not
anything else.
Joshua
is a typical little boy who loves to run, climb and
make their messes and looking at him you'd never
know there was this "situation" unless you saw him
have a seizure. He goes to school and even loves the
computer. We're very lucky and we know things will
work out a-ok.
Our family believes that in ALL things, comes good.
SeizureSupport.com is one of the many good things
that have come out of these very challenging times
of Joshua having seizures. It is our sincere hope
that we can continue to educate and support other
people, families, caregivers and friends who are
touched by seizures and Epilepsy.
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